After several weeks and pretty much an unlimited dairy diet we have continued successes. Mason doesn't really care for the taste of cows milk, so we continue to provide him with Soy. Convenient since I regularly use it for my mild dairy allergy and school keeps it on hand for several other children.
Cheeses are hit & miss. Some days the texture suits him fine, others he can't stand the stuff and even says, "yecko mommy". But as far as reactions, there haven't been any.
For a treat a weekend ago, Mr suggested we go out for dessert. I, despite my allergy, LOVE gelato and there just so happens to be a Gelato shop in town. So we all packed up & ordered a cup, 'er three.
Mr chose the Chocolate Peanut Butter, I chose the Pitsachio and Mason opted for the Watermelon sorbet.
Mason of course wanted to try our flavors to which we decided against sharing the Mr's flavor. We haven't challenged peanuts or peanut butter yet and aren't really anxious to try. We thought and discussed for a bit about the Pitstachio. It's a tree nut. Mason has never tested positive for tree nuts and that we know of hasn't had any reactions to cross contaminations. So I offered him one bite.
By the time we wrapped up, buckled in the car and turned the ignition, Mason was complaining that his tongue was itchy. Thankfully, we were just around the corner & administered the anti-histamine right away. There were no signs of long term affects, no rashes, no swelling, no breathing problems and no complaints come the next day. So while it wasn't as bad as his previous milk reactions, I don't think we'll be trying any nuts until he's at least age 5, and even then it will be under Dr. H's watchful eye.
The title of this post is two fold.
You see, I elected myself captain of a walking team at the FAAN walk in San Francisco this year, and have yet to do any sort of active fundraising for it. Please take a moment to find your way to our team page and make a donation. Without the resources and continued studies that FAAN promotes, I would have been flying blind on this journey of ours. Sincere thanks in advance for your generosity.
FAANtastic Families
September 13, 2010
July 6, 2010
"I won't get sick, Mommy. I won't!" he said with courage.
I don't think anything could have prepared me for the overwhelming feelings I have right now. I guess I should start at where this all started.
Since our Year in Review, The Mister and I have noticed that reactions are few & far between. Our largest offense is the seasonal sniffles and the contact milk reactions have all but disappeared.
I belong to an online community of mothers. They are a great group of women whom I've been lucky to be a part of since The Mister & I became engaged. We've all gotten married together, been through births, milestones, illness and death. Needless to say we've formed a very special bond. Some of us have stronger bonds than others based solely on our personal experiences as mothers. A few of us have been blessed with food allergic children. Those trials, that constant fear of the worst, and those victories have brought us all closer.
One of these fine women mentioned that her milk allergic daughter caught a sneaky bite of her FroYo and hours later showed no signs of reaction. The hope that this chance encounter sparked, grew and grew over the next several weeks.
As I mentioned previously, we had been foiled by illness when we had last planned to have Mason's allergies tested by the lab. I had been meaning to follow up and get that rescheduled, but this new found hope took me in a different direction.
Instead of asking to reschedule the tests, I asked Dr. H if a food challenge would be unheard of. The Mister & I had some Stay-cation time set aside and what could be a more perfect time to challenge the milk allergy, than mid-week when the doctor is readily available. To further my hope, I had devised a plan of attack and with the doctors blessing, convinced The Mister we should go for it.
Why not start with the very thing that led us to this journey that is Food Allergies? We purchased one single Organic Vanilla Yogurt cup. I swabbed a bit on Mason's inner elbow with explicit instructions not to lick it or rub it in, and then set the timer for an hour. Benedryl at the ready and Dr. H on speed dial, the waiting began. We all tried to busy ourselves, to avoid causing panic with the obessive checking of the arm, his eyes, mouth and skin for any signs of reaction. Each time we checked we were met with disappointment - nothing was happening. We were all expecting something to happen, and in a strange way, missed the call to action. There was nothing to do. We had never experienced nothing before. This was new territory for us all.
So the hour passed and we all breathed a sigh of relief. We dodged a bullet. Surely this was a jinx, a hoax. Did I really buy the dairy blend or did I, out of habit, reach for the soy. Nope, it's cows milk, says so right on the label. What's the next logical step when laughing in the face of danger? Get closer to it, of course!
"Mason? Would you like to try some Cow's Milk yogurt?" I said, trying not to sound scared out of my head.
"You mean, Daddy's yogurt?" with a bright eyed smile. The kid will do anything to be like his Daddy.
"Yes. Like Daddy's yogurt, but there are some rules. If you start to feel sick in your tummy, or itchy on your skin or in your mouth, we have to stop eating - take medicine - and call Dr. H. We don't want you to eat this if it makes you sick. Do you understand?"
"I won't get sick, Mommy. I won't!" he said with courage.
And so we served him half of the yogurt cup, with a gulp, some prayer and many crossed finger & toe. Luckily, we had plenty of things to distract us this day. Only when Mason reached for a cheek to brush off some new-bit, or scratched at his head, or sniffled once too often did we barrage him with questions. Every time we were answered with, "I not sick. I not."
The challenge was a success. But I was not yet ready to claim a full victory. I still cannot quite release all my worry. Even after corresponding with Dr. H, where he said he doesn't often call an allergy "outgrown" until a child is 4 or 5, but given the severity of past reactions and the lack of any such reaction for this challenge he's willing to declare Mason "outgrown". The best way to describe how both The Mister and I are feeling is Cautiously Elated.
We continued testing the waters two days later with more yogurt. Nothing. We tested again with cheese on his pizza tonight (placing this order was strange, both for us and the staff). Nothing.
The possibilities for our family are endless. I'm excited for all that Mason will get to participate in now, but mourning that he hasn't gotten to before now. I feel like we've deprived him, even though all we were doing was protecting him from harm.
So we will continue trialing new dairy foods. Dr. H said it wouldn't be necessary for us to really trial anything, but if it made us feel better it was fine to do so. After all, Mason is. . .
Since our Year in Review, The Mister and I have noticed that reactions are few & far between. Our largest offense is the seasonal sniffles and the contact milk reactions have all but disappeared.
I belong to an online community of mothers. They are a great group of women whom I've been lucky to be a part of since The Mister & I became engaged. We've all gotten married together, been through births, milestones, illness and death. Needless to say we've formed a very special bond. Some of us have stronger bonds than others based solely on our personal experiences as mothers. A few of us have been blessed with food allergic children. Those trials, that constant fear of the worst, and those victories have brought us all closer.
One of these fine women mentioned that her milk allergic daughter caught a sneaky bite of her FroYo and hours later showed no signs of reaction. The hope that this chance encounter sparked, grew and grew over the next several weeks.
As I mentioned previously, we had been foiled by illness when we had last planned to have Mason's allergies tested by the lab. I had been meaning to follow up and get that rescheduled, but this new found hope took me in a different direction.
Instead of asking to reschedule the tests, I asked Dr. H if a food challenge would be unheard of. The Mister & I had some Stay-cation time set aside and what could be a more perfect time to challenge the milk allergy, than mid-week when the doctor is readily available. To further my hope, I had devised a plan of attack and with the doctors blessing, convinced The Mister we should go for it.
Why not start with the very thing that led us to this journey that is Food Allergies? We purchased one single Organic Vanilla Yogurt cup. I swabbed a bit on Mason's inner elbow with explicit instructions not to lick it or rub it in, and then set the timer for an hour. Benedryl at the ready and Dr. H on speed dial, the waiting began. We all tried to busy ourselves, to avoid causing panic with the obessive checking of the arm, his eyes, mouth and skin for any signs of reaction. Each time we checked we were met with disappointment - nothing was happening. We were all expecting something to happen, and in a strange way, missed the call to action. There was nothing to do. We had never experienced nothing before. This was new territory for us all.
So the hour passed and we all breathed a sigh of relief. We dodged a bullet. Surely this was a jinx, a hoax. Did I really buy the dairy blend or did I, out of habit, reach for the soy. Nope, it's cows milk, says so right on the label. What's the next logical step when laughing in the face of danger? Get closer to it, of course!
"Mason? Would you like to try some Cow's Milk yogurt?" I said, trying not to sound scared out of my head.
"You mean, Daddy's yogurt?" with a bright eyed smile. The kid will do anything to be like his Daddy.
"Yes. Like Daddy's yogurt, but there are some rules. If you start to feel sick in your tummy, or itchy on your skin or in your mouth, we have to stop eating - take medicine - and call Dr. H. We don't want you to eat this if it makes you sick. Do you understand?"
"I won't get sick, Mommy. I won't!" he said with courage.
And so we served him half of the yogurt cup, with a gulp, some prayer and many crossed finger & toe. Luckily, we had plenty of things to distract us this day. Only when Mason reached for a cheek to brush off some new-bit, or scratched at his head, or sniffled once too often did we barrage him with questions. Every time we were answered with, "I not sick. I not."
The challenge was a success. But I was not yet ready to claim a full victory. I still cannot quite release all my worry. Even after corresponding with Dr. H, where he said he doesn't often call an allergy "outgrown" until a child is 4 or 5, but given the severity of past reactions and the lack of any such reaction for this challenge he's willing to declare Mason "outgrown". The best way to describe how both The Mister and I are feeling is Cautiously Elated.
We continued testing the waters two days later with more yogurt. Nothing. We tested again with cheese on his pizza tonight (placing this order was strange, both for us and the staff). Nothing.
The possibilities for our family are endless. I'm excited for all that Mason will get to participate in now, but mourning that he hasn't gotten to before now. I feel like we've deprived him, even though all we were doing was protecting him from harm.
So we will continue trialing new dairy foods. Dr. H said it wouldn't be necessary for us to really trial anything, but if it made us feel better it was fine to do so. After all, Mason is. . .
OUTGROWN!!!
March 30, 2010
A year in review
It's been almost a year since that last post.
I haven't forgotten this blog. I think about it often, but life seems to get in the way. A topic I want to discuss comes & goes and then we're on to the next phase of life.
Since that post, Mason has changed childcare providers to a more structured Preschool environment. When considering enrollment there, both Mark & I visited several times and had several meetings and discussions about how to handle Mason, his food, any reactions, and teaching the other kids that sharing toys is great, but food - not so much.
I keep waiting for the honeymoon period at his school to end. If that's any indication as to how well they are managing his food allergies, I don't know what is.
Spring is here once again, and we are in full swing of the daily nose sniffle battle. Earlier in the season Mason had a cold, which again settled in his chest. The wheezing, coughing fits and gasps in the middle of the night started up again. Terrifying. As soon as I recognized the whistle of the wheeze we took him in. His regular MD diagnosed Reactive Airway Disease, first step to asthma.
We were prescribed an inhaler to manage the attacks. Mason calls it his Airplane mask and is eager and willing when it comes time to adminsiter.
We still get flare ups from cross exposures like milk or cheese kisses from loved ones, but they are few & far between.
We are definately overdue for a visit to the allergist for some current records. Quite a lot has changed in Mason's developement over the last year, and I imagine it's not any different for his allergies, both seasonal and food related.
I commit to posting here more often. At least more than once a year.
I haven't forgotten this blog. I think about it often, but life seems to get in the way. A topic I want to discuss comes & goes and then we're on to the next phase of life.
Since that post, Mason has changed childcare providers to a more structured Preschool environment. When considering enrollment there, both Mark & I visited several times and had several meetings and discussions about how to handle Mason, his food, any reactions, and teaching the other kids that sharing toys is great, but food - not so much.
I keep waiting for the honeymoon period at his school to end. If that's any indication as to how well they are managing his food allergies, I don't know what is.
Spring is here once again, and we are in full swing of the daily nose sniffle battle. Earlier in the season Mason had a cold, which again settled in his chest. The wheezing, coughing fits and gasps in the middle of the night started up again. Terrifying. As soon as I recognized the whistle of the wheeze we took him in. His regular MD diagnosed Reactive Airway Disease, first step to asthma.
We were prescribed an inhaler to manage the attacks. Mason calls it his Airplane mask and is eager and willing when it comes time to adminsiter.
We still get flare ups from cross exposures like milk or cheese kisses from loved ones, but they are few & far between.
We are definately overdue for a visit to the allergist for some current records. Quite a lot has changed in Mason's developement over the last year, and I imagine it's not any different for his allergies, both seasonal and food related.
I commit to posting here more often. At least more than once a year.
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